My 37 year old daughter, who has been triple vaccinated with Moderna (she got all her shots, as soon as she was eligable), and who has been VERY CAREFUL (masking, distance, etc.) for the past few years, got COVID from a friend of hers who told my daughter she was safe. The friend said that she (the friend) couldn't possibly have COVID again, since she had just gotten over it less than a month before. Turns out, the friend DID have it again, and DID give it to my daughter. My daughter tested positive on July 1, immediately asked for and took Paxlovid, and tested negative about 6 days later.
it is now Aug 11, and my daughter has been diagnosed with Long COVID Syndrome. She (formerly a high energy person) cannot walk up a couple of flights of stairs without being incredibly exhausted. She can't spend 10 minutes tidying up the house she shares with her partner, without having to lie down for several hours. She wants a manicure, but can't sit up for the time it takes to get it in a shop, so she is trying to get someone to come to her home to give her a manicure. She can't do her job (she is in business for herself and teaches voice, and she can't sing, because it is too exhausting). She now has a heart murmur that she never had before. One of her friends took her to the ER the other night (her partner was out of town), because her heart was doing strange things. She apparently checked out OK (ECG and CAT scan with contrast?), but I had to wake up in the middle of the night to pick her up at the ER, since her friend had to go home to take care of their dogs. I stayed with her until her partner came back from out of town.
I am 76 years old, and I have worried about getting COVID and ending up with LONG COVID, since this thing started. It never occurred to me that my healthy 37 year old, fully vaccinated daughter would end up with long covid. I am so freaked out, and have nowhere else to talk about this. I am so sad and angry.
UPDATE: May 6, 2023 It is now been over 10 months. My daughter was able to join https://rthm.com which she participates in online and has a team of doctors and other professionals both researching Long COVID, as well as treating patients by "trial and error" in many cases. But they have suggested many things which have greatly improved my daughter's stamina and other symptoms. She is still very far from completely well, but she says that she feels like she has her personality back. She still has a walker with a seat (so that if she gets suddenly exhausted, she can sit. And uses a cane, when she isn't with the walker. She wears a medical corset and support stockings to push the blood back up to her head, and is on a special low histamine diet to reduce inflammation. She has to take a variety of pills six times a day! She pays for much of this out of pocket, including the cost of the Long COVID clinic. She still can't work, but luckily her fiancée makes very good money and so can afford it. She was interviewed for an article in CalMatters on Long COVID, and a lot more of her story is in there (along with some things about two other people). Photo of many of the pills and supplements that she has to take are in there too. https://calmatters.org/health/coronavirus/2023/04/long-covid-california/?fbclid=IwAR0zluml_KMN0orT0Jbwh2yMt1dLeNF1G45BXP31nTLfmKPRrIYP0shXqng